In a previous post I talked about my very good friend Guru. We first met at our consultation with Prof. Schallreuter in Germany, both attended the Dead Sea trip this year and remained in-touch since.
I met Guru in London recently and we caught up on each others repigmentation progress. Guru has had such success, he’s great example of how effective the treatment can be:
As with a number of people that use phototherapy treatment, he’s currently experiencing intense hyperpigmentation but usually this subsides and returns to normal after a few months. It still demonstrates just how much pigmentation can be regained.
I started looking more at what research and clinical trials had been carried out surrounding Vitiligo and what’s planned for the future. A few that I find the most interesting are on my Useful Links page. I’m interested in Gingko Biloba and it’s anti-oxidisation effects but there is also a run down of about 60 other trials on ClinicalTrials.gov. It got me thinking…
It’s generally accepted that Vitiligo currently has no cure because the medical industry believe it doesn’t warrant mass funding because the condition isn’t life threatening, and affects only 1-4% of the worlds population. People can donate to certain Vitiligo organisations but this usually isn’t well advertised and people can’t necessarily see where their money is going. I started thinking about how a Crowdfunding platform could really add value here. Crowdfunding platform’s such as Kickstarter, Crowdcube, etc all allow people to invest money in a potential product or business idea. I think applying this to Vitiligo research would be interesting, it would give people(assuming mainly those who have Vitiligo)the power to fund specific trials and tests and actually see the end result of that investment. Well, I googled, and it turns out there is a new start-up called MedStartr which allows you to do just that. When Vitiligo Support International hold their next global conference with patients, doctors and researchers, it might be worth considering!
Finally, I still can’t get the new post subscription function working as I want it to, so for the time being I’ve set up a Twitter account. If you use Twitter, you can subscribe to it for new posts.