Dead Sea, Vitiligo

Dead Sea: 21 Days at one of the most incredible places on Earth!

21 Days at the Dead Sea was enough time to cure any scepticism I had about the treatment or it’s effectiveness. My experience at the Dead Sea has not only helped my skin but had long lasting effects on my attitude towards Vitiligo. I’ll try to get as much into this post as I can, but if you have any specific questions please ask in the comments below.

View from Sea View hotel room

View from Sea View hotel room

I should mention from the outset that Prof. Schallreuter’s treatment isn’t just about the Dead Sea, for optimum results you must continue with the PC-KUS and UVB lamp(Panel or Handheld) when you return from the Jordan. I’m currently only treating my face with the handheld, I travel so much in my job  that I couldn’t make use of the full panel at this time.

Right from the start, everyone wants to know if it worked…

Well, about 14 days into the Jordan trip, my eyes started to repigment. I initially got hyper-pigmentation(darker than normal) around the edges and since I’ve been home from Jordan for three weeks now, it’s continuing to repigment inwards very well. I’m told the hyper-pigmentation will return to normal skin colour as I continue the treatment. Nowhere else on my body(hands, wrists,knees, etc. ) did I see any improvement but as I said, I’m not actively treating those parts now.

The hotel consists of a Medical Center where you will meet Prof. Schallreuter a few times to review your treatment and progression. There is also a decent gym, swimming pools(swimming outside of the Dead Sea water is not recommend due to chlorine), a sports bar and a large restaurant. Breakfast and Dinner buffets are included in the package and there are healthy options(gluten-free upon request) but I found the food very average. We often ate dinner at surrounding hotels because the quality was much better.

Dinner

Dinner @ Mövenpick’s Italian restaurant

The daily treatment routine consists of a morning session at 8am and afternoon session at 4pm. Each sessions has a 15 minute swim in the Dead Sea or one of the the Dead Sea pools(Indoor and outdoor), shower, then apply the PC-KUS before then sunbathing(naked!) in a specifically allocated bed in the open solarium. Men and Women are separate. The amount of time you sunbath is built up starting from 5 minutes to a maximum of 15 minutes and then switching sides of your body and different positions to make sure the UVB rays get to all affected areas. You will only spend a maximum of 1 hour sunbathing in the solarium at each session.

Dead Sea View from Men's Solarium

Dead Sea View from Men’s Solarium

About 120 people attended this year and there is a fantastic social circle out there and I’ve remained in contact with a lot since I’ve come back. There is no judgement with regards to the skin and everyone is very comfortable around each other. No matter how mild or severe the Vitiligo, everyone has had the same experience of the psychological stress of having the condition. It is a very welcoming environment and Prof Schallreuter even makes some effort to provide social events to help integrate the group. Whilst I was there, I played football almost daily, there was a Disco, an Arabic night, I stayed the night in the Wadi Rum desert and visited Petra.

Wadi Rum

Touring Wadi Rum

I also had the pleasure of meeting and spending a considerable amount of time with Lee Thomas whilst doing the treatment. Considering Lee had lost of all of his pigment, it was amazing to see how much he regained – He believes that now around 80% is back. Lee is inspiring and is likely the most influential person in Vitiligo awareness. My very good friend Gurinder interviewed Lee whilst in Jordan for his own personal blog, you can watch the interview here:

In terms of the success for other patients out there, it was mixed. The majority had very good repigmentation and others had little or none but it was clear that all those that were successful  followed the Professors treatment plan to the letter. The Pseudocatalase cream is very important to bring the oxidation of the skin down. I heard from those who had tried Climatherapy/UVB with and without the cream and they only started repigmenting with PC-KUS use. One patient even mentioned that it took 8 months for her to see any new pigment but she is now 95% repigmented. Many that go to Jordan have been previously, some go yearly, others bi-yearly and others have only needed to return after 10 years.

I feel the trip is worth it, there is no doubt it’s expensive but it does work and it may give your skin that necessary boost that combined with the UVB lamp will kick in the repigmentation. It’s not a quick fix, be prepared that it can take years to bring much of your body back to it’s normal colour and even then, parts may never repigment(commonly the hands, feet, etc). Also, should your Vitiligo become unstable again you could still lose that pigment you’ve regained. Apart from that, it’s not just about the the repigmentation process, meeting so many other people that cope with the same condition is a very powerful thing and does a lot for the psychological recovery process.

In conclusion, my opinion is that this is probably the most effective Vitiligo treatment available at the moment with the highest success rate but again, it’s only a treatment. My goal is still to fix the internal problem with my immune system, whatever that may be. Diet and supplementation came up a lot in discussions out there and I still believe there is a naturopathic, nutritional method to this so I will continue to investigate and blog whilst also doing my PC-KUS/UVB treatment.

Here are some of the pictures I took out there, I’m tempted to buy a pet camel now….. 😉

I’ve had a few comments asking about prices of the Dead Sea trip. It comes in two packages and you can either fly from Frankfurt which is included in the package or pay for the flight yourself if it makes more sense to do so. For me, it was cheaper fly directly to Jordan from London. Please be aware these prices are subject to change year on year, this was just for 2014.

Dead Sea price list including flight from Frankfurt:

DS Trip with flight

 

Dead Sea price list without flight from Frankfurt:

DS Trip without flight

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100 Comments

  • Reply Delly May 26, 2014 at 6:44 am

    Hi Simon! Thanks for the feedback! Happy to see that things are going well and that you had a great experience there. Will keep on followong your blog! Keep up with the info! Do you know if Thomas Lee has a blog or facebook where one can follow him? Or any of your “Dead Sea” friends? Would love to follow more people who are experiencing this problem. Its a way to get educated. Thanks again Simon! Keep on with the blogging!

    • Reply Simon May 27, 2014 at 6:41 pm

      Hi Delly,

      Lee Thomas does have a blog – http://www.leethomas.com/the-blog.html

      I also met Effie out in Jordan and she is doing some youtube videos to track her repigmentation. You can find her channel here – http://youtu.be/HHf6JiVopXw

      Simon.

      • Reply Joel September 10, 2014 at 12:47 pm

        Hi Simon

        I am from the UK too, 28 years old and have been wondering about this treatment. Are you able to advise how I could opt for the treatment. What made you go? Sorry I’m new to this blog. By the way it looks great !!

        Thanks,

        Joel.

        • Reply Simon September 26, 2014 at 9:11 am

          Hi Joel,

          Take a read through my previous posts (the ones specific to the germany trip/dead sea) and it should give you all the information you need.

          If not, feel free to ask questions.

          Simon.

  • Reply Delly May 28, 2014 at 2:13 pm

    Thanks Simon! Keep up with the blogging! U should have a facebook page too…easier to follow. Take care!

    • Reply Simon May 28, 2014 at 3:27 pm

      Thanks Delly. I’ll sort out the e-mail notifications as soon as possible. 🙂

      Simon.

  • Reply Mohamed Al Ghailani May 29, 2014 at 6:36 am

    Hey Simon,

    first of all thank you for taking the time to write this blog. I met with Dr. Schallreuter this january and I’ve been using the treatments since then. the problem is that my work schedule also involves frequent travels and I’m finding it hard to use the UVB machine all the time. i just wanted to know how long do you use your UVB machine for and if you apply the lotion to your whole body or just to the parts which you expose to UVB radiation.

    thank you again and all the best in your treatment.

    Mohamed

    • Reply Simon May 29, 2014 at 11:14 am

      Hi Mohamed,

      Thanks for the comment.

      You have the same problem I do, I travel a lot, So it’s difficult to maintain a schedule. I currently only apply the PC-KUS to my face and use the handheld lamp and I do this morning and night.

      Regards

      Simon.

  • Reply Daisy May 30, 2014 at 1:49 pm

    Hi Simon,

    Glad to know its going well so far..
    Can i buy the cream from somewhere else other than from Prof Schallreuter? as i don’t have time to visit her any time soon, what with work.

    also could you tell me the make and model lamp you got, so i make sure i buy the correct one, as i have read on the net that some of them are fake.

    One more question, where did you buy your Ginkgo Biloba and St John’s’ Worts supplements from? do you feel this has helped?

    Sorry one all the questions.

    Daisy

  • Reply kyle June 2, 2014 at 10:17 pm

    Hey man,

    I stumbled across your blog and found it very interesting, thanks for posting. I had a couple of questions about the cream and diet.

    What is the cream that you and others used for the dead sea trip? I thinks its pseudocatalase but in the video you posted of lee thomas he was talking about scenesse & clinuvel. I didn’t know if they were the same or not. Also how has the re-pigmentation been since your return and subsequent posts?

    As far as your diet, the paleo, has it worked? I saw in another post you asked the dr from the dead sea trip about diets & supplements effect on vitiligo. I’ve tried a few, no vitamin c, taking ginkgo biloba and magnesium etc. and didn’t have any success. I wasn’t sure how the paleo worked for you. It seems like it regardless of vitilgo its not a terrible life choice.

    Anyway thanks for the post,

    Kyle

    • Reply Simon June 2, 2014 at 10:27 pm

      Hi Kyle,

      Everyone at the Dead Sea was using PC-KUS(Pseudocatalase) including Lee, I think he has been involved in the other treatments but none of these were used in conjunction with the Dead Sea trip and that’s how he’s regained his pigment.

      Personally, I’d always recommend Paleo because of the health benefits regardless of the Vitiligo affects. For me, I didn’t continue it long enough to see if worked. I’m starting to correct my diet after a long bad spell now, so hopefully I can let you know in the coming months if it contributes to stopping the Vitiligo or even helping re-pigmentation.

      Regards

      Simon.

  • Reply Tom White June 3, 2014 at 8:44 pm

    Hi Simon,

    What a success. Thanks for the excellent report. Just what I needed to hear right now as well as my vit is worsening quickly so I’m hoping to go next year.

    • Reply Simon June 4, 2014 at 9:16 am

      Hi Tom!

      Hope you are doing well. Yes I definitely recommend the treatment. I’ll keep updating with my progress.

      Simon.

  • Reply Reena June 4, 2014 at 5:30 am

    Hi Simon

    So glad to hear the trip and treatment are going well. We are going in July. My son only has vitiligo around his eyes , fairly stable. we are hoping this treatment will work.

    How has your response being so far – esp for face?

    Regards

    • Reply Simon June 4, 2014 at 9:14 am

      Hi Reena,

      Thanks for the comment.

      The face is usually the easiest to repigment. My face is progressing nicely at the moment, I’ll try and get some photos up soon.

      Unfortunately, I didn’t see any improvement on any of the few spots I’ve got elsewhere on my body but I’m not actively treating them now that I’m back home.

      Regards

      Simon.

  • Reply ayur June 4, 2014 at 7:17 pm

    Simon,

    Thanks for your wonderful blog. I first got my vitiligo just three years ago, developed suddenly after the flu vaccination. As everyone else, tried various treatments and had some success with UVB and ayurvedic medicines. Now my vitiligo is stable for the last 1 year, it could be due to the ayurvedic medicine I am taking but not sure. I planned to consult Prof. Schallreuter last year but couldnt make it. I have bought Dermalight 80 and using it for the last couple of months and I can see improvements on my scalp. I do it twice a week and increase 20 seconds each time, now I treat the patches with 4 minutes (around 4 mins is the max time as per dermalight spec)of UVB twice a week. I don’t treat my eye as I am concerned about safety. In one of your other post, I read that you treat your eyes with UVB for 30 seconds a day everyday and then twice a day.

    I have patches on both eyelids and under one eye. I want to treat them first .Whats your experience of treating eyelids with UVB? If you were advised 30 seconds exposure to UVB everyday , I would like to try that as well. Please let me know.

    Thanks very much

    • Reply Simon June 6, 2014 at 4:27 pm

      Hi Ayur,

      Thank you for the kind comments!

      As you said, I do treat my eyes daily with no adverse affects. I try not to look directly at the light although it does happen sometimes, it won’t cause instant harm(maybe some temporary blindness like looking at the sun) but it’s obviously advisable not to do it.

      I am getting some repigmentation on my eyelids but it’s a very slow process. The Prof. showed me pictures of a girl that regained all pigment on both eyelids and even turned white eye-lashes back to their normal colour 🙂

      Regards

      Simon.

      • Reply ayur June 7, 2014 at 8:07 am

        Simon,

        Thanks for encouraging words. I will start treating eyelids. Could you please tell me the your duration and frequency of UVB exposure to eyelids so that I will get some idea?

        Regards
        Ayur.

        • Reply Simon June 7, 2014 at 4:00 pm

          Hi Ayur,

          With the Dermalight 80 and it’s comb attachment I treat my eyes for 33 seconds in the morning and at night.

          Simon.

          • Ayur June 8, 2014 at 5:13 pm

            Thanks Simon. One last question. What distance I should maintain between the UVB and the eye?

          • Simon June 8, 2014 at 7:21 pm

            Ayur,

            Use the comb attachment against your eye. That’s the correct distance.

            Simon

    • Reply Nb April 16, 2017 at 9:11 pm

      Hi Ayur,

      I’ve just come across this post and wonder how you have been getting on? Did the UVB Light work for your near your eyes?
      Thank you.

  • Reply Flavio June 6, 2014 at 2:57 am

    Hi Simon,

    Thanks for reporting your experience at the Dead Sea.

    Since it’s being so difficult to get a reply from Dr. Schallreuter, I’m planning to take my son to the same hotel and follow the procedure according to your report.

    I’ve been trying hard to be in touch with Dr. Karin’s clinic to try to book a Dead Sea trip to my 13 year old son.

    Can you help me with that?

    Where can I buy PC-KUS cream? I mean, the German one.

    Do they sell PC-KUS at the center. Do they?

    Regards,
    Flavio Coragem

    • Reply Simon June 6, 2014 at 4:22 pm

      Flavio,

      I’ve consolidated your questions into this one comment.

      Many people have issues contacting the Prof. at this time of year because she has been in Jordan and there is delay when she returns. I don’t have any direct connection to her that could influence it, I also have to wait for her to reply to my e-mails.

      You can only buy the German PC-KUS from her after your consultation in Germany.

      No, they don’t not sell PC-KUS at the Dead Sea Center. I’m told they do run alternative programs for Vitiligo but those don’t include the PC-KUS.

      Regards

      Simon

      • Reply Flavio June 7, 2014 at 2:56 am

        Thanks again. I appreciate how you clarify things. I’ve been studying Vitiligo treatments a lot. I wish someday I will be able to cure my son and help the others too. Regards.

      • Reply Flavio June 7, 2014 at 3:15 am

        Simon,

        Do you have access to buy PC-KUS whenever you want, since you’ve been in German?

        If so, would you mind to order one for my 13 year-old son, considering that I would pay you in advance ? You would have to ship it to Florida…

        I’m going to Dead Sea with him in June 20th. I will follow the treatment as you described. Maybe I will meet Prof. there.

        Last, but not least, I’ve been developing my own PCat. But I would really like to compare the effectiveness to the German one. I promise to post every single formula detail if they have similar performance/results. If not, I will abandon my project.

        I have no intention to make money with this. BTW, nowadays I’ve been building UVB-NB hand helps for ebay buyers at cost price ( as volunteer work).

        Please let me know.

        Regards.

        • Reply Simon June 7, 2014 at 3:59 pm

          Hi Flavio,

          I’m afraid that it’s more than just buying the PC-KUS, you need to go to Germany to have a series of tests(including blood) with the Prof. to see if you react to the creams and to get a specific variation of the cream. I for example am on PC-KUS 10, which is most common but I know others that are different numbered PC-KUS depending on their severity of the Vitiligo and how they’ve responded to the treatment.

          My advice as always, is to just wait and speak to the Prof when she responds to you.

          Regards

          Simon

          • Flavio June 7, 2014 at 5:55 pm

            Hi Simon,

            Thanks for your prompt reply as usual.

            You are right, but my son’s spread is time sensitive. I’ve got to do something, but wait.

            Would you mind to ship me at least a small amount (1 cubic centimeter), so that I can do the comparisons?

            You’ve got think that many other people are in this same situation (money-wise or contact-wise). If I succeed with the cream and the trip by myself, it’s gonna be a breakthrough to many others.

            Please let me know.

            Regards,
            Flavio Coragem

          • Flavio June 10, 2014 at 9:13 pm

            I’ve finally booked to October.

            I’m going to Dead Sea in June 20th with my family. We will spend a day in London when we return from Jordan. That’s because of the connection to Orlando. If you change your mind and accept the idea to give me just 1 cubic centimeter, we can meet in London.
            I’m sure we could exchange a lot of information.

            Regards,
            Flavio Coragem

      • Reply Sujata sarawgi April 9, 2017 at 4:48 pm

        Please may I have Professor Schallreuter email I’d I would like to take an appointment thanks

  • Reply Flavio June 7, 2014 at 6:01 pm

    Please let me know if you’d rather to touch base though fcoragem@gmail.com.

  • Reply cheech June 12, 2014 at 6:29 am

    Hey. It’s wonderful of you to share your experience. Thanks! It really cleared up a lot of my questions, but I still do have one. You mentioned sun bathing, can you elaborate this part of the treatment for me? As in, how does it work exactly? Thank you for your time 🙂

    • Reply Simon June 12, 2014 at 9:42 am

      Hi Cheech,

      You go into an open solarium with sun beds that have been assigned to you. After applying the cream you sunbath naked for the maximum of an hour, switching sides every 15 minutes so all parts of your Vitiligo are exposed to the suns rays.

      Regards

      Simon.

  • Reply z khan June 21, 2014 at 3:05 pm

    Hi Simon…Have you tried Ayurvedic, homeopathic or naturopathic treatments? I know you mentioned that you tried the paleo diet but not long enough. I do think that fixing internal issues is key to lasting success with any vitiligo treatment.

    could you post link for Guru’s blog and lee thomas blog. That would really be helpful.

    • Reply Simon June 21, 2014 at 3:38 pm

      Hi Zee, I totally agree.

      Have you checked the post about the nutritional balancing program?

      Also check the Useful Links page and look at LegallyVegan’s page.

      Guru hasn’t started his blog yet as far as I’m aware. Lee’s blog is here – http://www.leethomas.com/the-blog.html

      Simon.

      • Reply Guru July 8, 2014 at 2:44 pm

        I will not start a blog, everything what my friend Simon is telling is the same information i will share.

  • Reply Pedro Gonzalez June 25, 2014 at 3:15 am

    Dear Simon,

    Please, don’t take this the wrong way, but by creating this blog, indirectly there is some responsibility in your part. I seen pictures of you in the blog and guy you have 1 or 2 spots, not even on the face. Yet, even with those tiny spots you do not show pictures of the progress. I would of been showing a weekly picture of the progress in each individual spot. Is very easy to do and for my own satisfaction of seen the progress and showing to people. Note, there is a lot of money required for this treatment and people are depending of seen the truth. Which brings me to the next comment.
    If we compare your tiny spot to Lee Thomas, your spots should of been gone by now. And, please do not respond with every person the treatment works differently. Lee was complete white (whole body) and you have 2 spot. You both went to the Dead Sea once. And, Lee Thomas re-pigmentation has been exponential and your 2 spot, well we don’t know. But, by now it should of been gone. Note, Lee Thomas has a lot of money and a lot of influence. Who is to say, that Lee Thomas went to Europe and bought and used the SCENESSE from Clinuvel. He has money he can buy it for the right price. Everything is for sale if you have the money, lets not be naive. The SCENESSE looks like the best treatment that does work, including the hands and feet.

    Last, no one talks about the cure drug found in Loyola University in Chicago. Yes, there is a cure and is going through the FDA. I believe that the funds to speed up the approval of this drug is 1.25 Million which that is a drop in the bucket compare to the Cancer research. In fact, we should all come together and come up with the money. There are websites that help for this type of causes. Imagine, instead of wasting $5000 in going to Jordan lets all put the money in a fund foundation and get the drug approved. I can’t wait 2 or 3 years for the cure.

    I am sorry for putting you on the spot and I am not trying to be disrespectful.

    Sincerely,

    Pedro Gonzalez, Miami Fl

    • Reply Pedro Gonzalez June 25, 2014 at 3:37 pm

      Typo: I can wait 2 or 3 years for the cure. NOT can’t

    • Reply Simon June 26, 2014 at 10:36 am

      Pedro,

      First of all, I do have Vitiligo on my face. It’s it’s mostly on my left eye but some on my right, I also have some next to my lips and on my chin. It’s not always noticeable from pictures because I’m generally lighter skinned anyway. I have it on both knees, wrists and some on my hands. Secondly, I had planned to show before and after photos but only when I’ve got full repgimentation or at least it gets to stage where it’s no longer improving. Ask anyone with Vitiligo that has experience of UVB, although you will gain some pigment in a few months, full repigmentation can take years. I expect my face to be at a stage where I will do a photo comparison in about 2 or 3 months.

      I started this blog to document MY process with Vitiligo, and in the 8 or 9 months it’s been live I’ve had an overwhelmingly positive response from people going through similar challenges. If the blog helps others then that’s great, but I’m not accountable for how people choose to treat their Vitiligo. I have no financial gain from the blog(it actually costs me money to run it) and If you want to know about SCENESSE, approach Lee, I’m sure he will happy to talk to you about it.

      If you are unhappy with how I present information or that I don’t go into enough detail with pictures that’s fine, but I’m not going to change my approach purely because you feel I should. Truthfully, if it makes you so unhappy, I recommend you no longer read my blog.

      Finally, I hadn’t heard of the drug found in Loyola University, I’ll read up on it.

  • Reply Pedro Gonzalez June 25, 2014 at 3:39 pm

    I would like to see other peoples respond to my comments. Please, be free to respond also.

  • Reply CH June 26, 2014 at 9:56 am

    Dear Simon,

    Thank you so much for your openess about your vitiligo and thanks for sharing your experiences with us! I have followed your blog for quite some time now and I was especially thrilled when I read about your trip to Jordan.

    I am not suffering from vitiligo, but my 9-years old son is! He has during the last two years lost approx. 20% of his pigment on different areas of his body (incl. arms, legs, face, fingers, etc). He has light skin and is not that affected of it (YET!) and he is dealing with it quite well – I guess his open and positive personality as well as our (his parents and family) relaxed and open attitude around it helps him a lot 🙂 But we also think that doing something about it now might help him in the coming years…..
    We had the opportunity to go to Germany in January 2014 and we started Prof. Schallreuter´s treatment as soon as we got back home! And guess what? It works!!! And yes, it´s expensive (trip to Germany, UVB-panel, lotions, etc) and we need to be quite disciplined to see results! But when all that is said I can only say that it´s absolutely worth it! It´s a looooong trip and we are far from there yet, but we see his color is coming back slowly now!

    And that brings me to what I really wanted to write (but thought I had to give you a little background information first)!

    Mr. Pedro Gonzales – I´m so sorry, but who are you to judge??? One little vitiligo spot or a whole body that has lost it´s pigment – is the amount of pigment loss what counts? And does it give you the right to indicate that it´s nothing to fuzz about when you only have one or two spots that are hardly visible (to you!)? They might be visible to the person who has them and that person is the only one with the right to decide what to do about it.
    I can´t believe that you ask Simon to post pictures of his progress and that you want him to prove that the treatment has the desired effect!!! Simon is sharing his personal experiences with this treatment on his personal blog – as far as I know he is NOT doing advertice for the lotion or for the procedure!
    Instead Mr. Pedro Gonzales – do your homework and read the background and the scientific facts about it. There is a lot of publicated abstracts and articles on the internet to study and that should be enough proof to you that it works!
    And yes, the treatment is expensive, but what do you think the research at the institute costs? The research this institute does is beneficial to all vitiligo research and it might be beneficial to you as well some day…… Who knows?

    Simon, I hope that you won´t be offended by my comments as they are related to you and to the comments on your, but I couldn´t help it 🙂 Please keep us updated on your progress.
    I wish you a great summer!

    Take care,
    CH

    • Reply Simon June 26, 2014 at 10:40 am

      Hi CH,
      Thank you for taking the time to comment and sharing your Son’s story. We do the best we can with what’s available at the moment but I’m almost certain there will a be a cure in your Son’s lifetime, research and treatments are slowly gaining traction and the condition is getting a lot more visibility 🙂

      Simon.

  • Reply Pedro Gonzalez June 26, 2014 at 5:39 pm

    Hello Simon, CH, and others

    I have vitiligo and I know that Simon has vitilgo. I find it admirable in his part to expose something that is personal. I am not disputing or belittling Simon’s vitiligo. CH you are taking my comments out of context and twisting it. And Simon I know you do not have any financial gain with this treatment and the blog.
    The questions that I am raising is perfectly reasonable. How is it that Lee Thomas shows an abundance of re-pigmentation and you Simon have not been able to show or say anything of your spot. We ALL know that re-pigmentation is easier on Caucasian compare to the darker race. Please…please don’t bring the race card issue CH, note I am Hispanic. Don’t get defensive Simon, by now you must have some type idea or an assessment. There is no failures in research. Is a step forward.
    CH, yes I have done my research and my homework. And, you can not believe everything you read and see in the internet. CH writes, “There is a lot of publicated abstracts and articles on the internet to study and that should be enough proof to you that it works!” REALLY…Did the publication come from JAMA, EFIM, JAAD, or JEADV.
    Nope, only one report from Prof. Schallreuter. Note, the color lady on the paper I have seen her face in other websites for other treatment and Schallreuter is saying visual results of re-pigmentation occurring in 6 weeks. How about them apples..CH.
    I am getting the same or even better results on my face by just putting a little bit of sunscreen and running everyday in the middle of the day, in Miami. In fact, my forehead is about 60% re-pigmented and the cheeks are spotting about 10%, but my hands no dice. LOOK, I posted some facts about myself and my vitiligo. The cream PC-KUS looks like is just a sunscreen. Hopefully I am wrong. I would like to here others about PC-KUS. Is that alright with you CH?
    I recommend CH to watch the movie “Lorenzo’s Oil” you are going to see yourself in the movie of .”I can´t believe that you ask Simon to post pictures of his progress and that you want him to prove that the treatment has the desired effect!!! ” how could you be so judgmental and so inconsiderate… DAM RIGHT I ASKED THIS IS HOW YOU SOLVE PROBLEMS!!!!! And I started my blog by saying, “Don’t take this the wrong way…”. So, I guess asking you CH for some picture is out of the question??
    AND, Simon and CH the comment that is going to take years to get 100% re-pigmentation is NOT A TREATMENT OR A SOLUTION IS AN HALLUCINATION.
    LAST, Simon and CH do a google search on “vitiligo mice” there you will get links of Caroline Le Poole, Ph.D., of Loyola University Chicago. CH for homework you can write a report and post it in this Blog.

    Sincerely,

    Pedro Gonzalez, Miami Fl

    • Reply Simon June 26, 2014 at 9:46 pm

      Pedro,

      I’m not being defensive at all, it makes no difference to me whether you believe me or not. It’s actually really hard to understand what you are asking me and I’m not sure what answers you want.
      It sounds like you are asking me why my repigmentation is slow compared to Lee’s? Lee’s repigmentation has taken about 18 months(possibly longer) to get the state it is now but again, it is true that everyone is different. If you have questions about Lee, direct them to him and his blog. He will validate the Profs. treatment, he is actually one of the main advocates for it.
      Not only do you post comments in a very blunt manner, it’s not up to you to dictate my time frame of posting pictures of my repigmentation progress so I suggest you stop complaining about it. I’ve welcomed quite a few people on this blog to chat to me on skype and a number of people from London that have been to Jordan have seen my progress on my face since returning home. On another note, I’ve seen no evidence that the rate of repigmentation is dictated by race or skin colour.
      I’ve never said the Dead Sea is some miracle cure. It’s actually very simple, the climate mixed with lowering the oxidisation of the skin through the Dead Sea and PC-KUS so I still don’t really know what you are unhappy about.

  • Reply Pedro Gonzalez June 26, 2014 at 5:42 pm

    The abstract report from Schallreuter is not from JAMA, EFIM, JAAD, or JEADV.

  • Reply Flavio June 26, 2014 at 10:23 pm

    Hello All

    First of all I’d like to say that I’m very grateful to Simon for his big effort to publish and maintain this blog. It’s very helpful and hopeful. I appreciate that.

    Pedro, your opinion is quite important. I really found it respectful, despite the fact that you approached in a straightforward way. Not everybody is used to this.

    Dr. Schallreuter’s treatment is probably the best one available that works indeed. This woman has done real research about it. However, her theory is based on the fact that vitiligo sufferers have oxidative stress. Most do, but not all. Oxidative stress affects the skin directly by H2O2 (Hydrogen Peroxide) generation, besides it confuses the immune system, since it mutates mitochondrial DNA.

    Dr. Schallreuter created the pseudocatalase (PC-KUS), which is a mix of chemicals that helps to avoid the H2O2 damage on the skin by breaking it into oxygen and water. She also recommend UVB-NB exposure to accelerate the melanocyte production. It works better on thin hairy skin. Thick hairless skin has the worst response for this treatment.

    The problem is that PC-KUS helps to fix the effect, but not the cause. You will have to get rid of the oxidative stress anyway. Usually, supplementation fixes our antioxidant defense system, but it takes time. So in the meantime, the confused immune system kill the melanocytes (friendly fire).

    Dr. Schallreuter’s treatment is not miraculous. It won’t work properly (if):
    1- if your root vitiligo cause is not the oxidative stress, like: food allergies, leak gut, low stomach acid, adrenal fatigue, heavy metal toxicity, hypothyroidism, etc.
    2- if the oxidative stress is not properly treated. Search for Dr. Strand Health for treatment suggestion.

    Testing all possible vitiligo roots might be very expensive since it demmands too much lab work, but following pseudocatalase treatment may not be. You can make it yourself easily and expose the patches to UVB-NB twice a day.

    Alternately you can also do the Dead Sea tretment at home buying original certified Dead Sea salt at ebay and bath yourself in a tub once a day.
    ,
    Average cost:
    1-pseudocatalase: US$ 9 / 100ml
    To produce 100 grams of the cream you need a precision scale, 380mg of Manganese (II) Chloride, 200mg of Calcium Chloride, 3 drops of distilled water, 2.3g of Sodium Bicarbonate (Baking Soda), 100g of Neribas cream or a similar cream containing Disodium EDTA
    2-UVB-NB hand held: US$ 70
    3-Dead Sea salt: US$ 39 / 20lbs

    So, It’s worth a try.

    I hope it helps.

  • Reply Pedro Gonzalez July 2, 2014 at 4:38 am

    Thank you Simon and Flavio for your responds it is well appreciated.

    Next questions:

    1. Where in Germany does Dr Karin Schallreuter has her practice? Exact address and phone number and e-mail.

    2. Does she speaks English?

    3. Now Flavio and others, Am I suppose to go to Germany so she can evaluate me and recommend/suit the PC-KUS. Those that mean that there are different versions of PC-KUS like version 1, 2, 3 etc… Because I only see one formula. So, why do I need to go anyway?

    4. Those Guru have an e-mail that he can give out?

    5. Here is a good one. How come the insurance covers the staple operation for obesity and the insurance does not consider covering people with vitiligo. Obesity is simply solve by just eating healthy, we do not have control of our disease.

    • Reply Flavio July 3, 2014 at 1:23 pm

      Hi Pedro,

      I’ve never been there, but see below;

      1- Walther-Rathenau-Straße 49a
      D-17489 Greifswald, Germany

      2- Yes.

      3- She does have, but #10 is the regular one.
      I believe that she may add more or less cream for the same amount of chemicals on each version. It will affect the concentration.

      4-n/a. I would like to have it too.

      5-That’s true, but it’s out of the scope in this thread. Anyway, vitiligo sufferers should be better organized…

    • Reply Guru July 8, 2014 at 2:25 pm

      This is my email: digitalebrieven@gmail.com
      If you spam me i will ignore you 😉

    • Reply Elizabeth June 14, 2015 at 11:49 pm

      Pedro
      As a female vitiligo patient of 15 + years and over 40% body affected I understand how keen you are for repigmentation. However you are being extremely disrespectful and ungrateful to Simon.
      1) Simon quite clearly labelled this blog as a documentation of HIS experience
      2) he has absolutely NO obligation to share any information or pictures. Did you consider he may have vitiligo in private places he doesn’t want to photograph??
      3) success is subjective eg I have 1 eyelid etc de pigmented and 40% of body – I would feel MUCH better even if I could only have the eyelid regimented since it’s the most exposed.
      4) if ayone want facts on the treatment- do the research yourself don’t rely on others and get angry at them because they don’t have all the answers you want – get them yourself as did Simon! It is well documented that the Dead Sea treatment is the most successful but not 100% – some will not repigmentation and the reasons are questions for the treatment provider, not the patients!!
      5) the Loyola research is very new and has a LONG way to go. I am sure I saw somewhere that dr Le Poole thought maybe 10 years I will try and find it.
      6) criticism is a cop out, if you want answers get off your bum and find them yourself and stop critiscing people who have already put great time and money into it. Be grateful for the new info and put it in your basket and keep on with your own journey.
      7)no one owes us a cure and we might not get one. So we might as well relax and enjoy life. I have 2 arms 2 legs and a fairly decent brain so am gonna try and put it to use to help people with vitiligo somehow.
      8) another nutritional approach is documented at http://www.thevitpro.com by a lady who re pigmented after about 40 years. Her website is very informative but you have to remember there are no guarantees and do your own due diligence. She is a patient not a doctor after all just like Simon.
      9) I have seen vitiligo emerge as an Internet topic since 2001 and I am getting really disheartened by the victim mentality out there, so many patients expect to be handed a magic cure for free after someone else does the work. The whole point of vitiligo is it takes disciplined self care, which ever treatment you choose. Everyone’s biology is different.
      I wish you peace with your vitiligo and hope you can draw something positive from it for your life. For me I am studying health and hope to help people that way and I have found it very helpful to gain a broader perspective and not focus on vitiligo so much.
      Best wishes and thanks Simon for sharing your experiences about the Dead Sea.

  • Reply Flavio July 3, 2014 at 4:06 pm

    Does anybody have Desta’s email/phone?

  • Reply Deborah July 4, 2014 at 10:20 am

    Hi Simon and thanks so much for your report,

    i would like to know what is the name of the hotel in Jordan you stayed in.

    thanks,

    Deborah

    • Reply Simon September 26, 2014 at 8:45 am

      Hi Deborah,

      Yes, as Flavio says, it’s the Dead Sea Spa Hotel – http://www.dssh.jo/

      Regards

      Simon

  • Reply Flavio July 4, 2014 at 11:45 am

    Deborah

    This is the Dead Sea Spa Hotel.

    Regards.

  • Reply Delly July 5, 2014 at 10:38 pm

    Hi Simon! Thanks again for your blog! A couple of months ago I told u about my 6 yr old who has vitiligo. She has used Protopic and cutivate. Only two little spots her forehead repigmented but the rest on her body remained the same. I belong to a closed group on facebook called Vitiligo em Portugal. Its a small portuguese group . We talk about our experiences , treatments, etc. Its quite a close group. Good communication. In this group i discovered that a great majority had success with a product called Vitiflora. I decided to buy it and try it on my daughter. She has Been using it for 6 weeks. After 3 weeks i noticed repigmentation on certain spots. Her first spot that is on her neck which is almost 2 yrs old is repigmenting with great success. Thank God! Its a brazilian product. I actually spoke to the pharmacist who makes this product and she explained to me how i should apply it and assured me that it does work but the hands and feet might not repigment… In some cases the hands and feet do repigment. If i had a blog i would post the photos that i am taking now and then. I am amazed and so hopeful now!!! Keep on blogging Simon! Love your blog!

    • Reply Simon September 26, 2014 at 8:52 am

      Hi Delly,

      That’s fantastic news! Is it this stuff – http://www.vitiflora.com.br/2012/product.php?id_product=88?
      The description says
      “CREAM RENEWAL SKIN VITIFLORA

      60g

      Removes dead cells, accelerating the process of cell regeneration, reduces white spots in case of hypopigmentation, acts as an antioxidant and anti aging.

      COMPOSITION; Aqua, Disodium EDTA, Propylene Glycol, Glycerin, Methylparaben, Prpylparaben, Parafinun Liquidum, BHT, Cetearyl Alcohol, Ceteteareth-20, Glyceryl Stearet, Urea, Salicylic Acid, Macadamia Seed Oil Ternifolia, Carapa Guaianensis Seed Oil, Retinyl Palmitate, Tocopherol, Azulene, Dimethicone, Imidazoledinyl Urea, Parfum. .

      USAGE. Use night cream and remove a thin layer in the morning.”

      Thank you for taking the time to comment, the kind words and please keep me updated on your daugthers progress!

      Simon.

    • Reply Marisela February 17, 2016 at 9:45 pm

      Wow … So happy for your daughter . Can you please tell me where you bought this product ? Thank you so much

  • Reply Larel July 10, 2014 at 10:56 am

    DEADSEA IS HELPFUL BUT NOT THE PCKUS CREM,THE PROFESSOR HAVE TO BE HONEST AND TELL THE WORLD, IT IS THE SUN AT DEADSEA WHICH HELPS TO REPIG NOT THE CREM.

    • Reply Flavio July 13, 2014 at 4:40 am

      Hi Larel, why do you think that?

      Did you try it before?

    • Reply Guru July 14, 2014 at 10:21 am

      Hi Larel,

      do your homework buddy, the cream lowers the H2O2 level in your skin what results in quicker repigmentation. Besides of that it is not only the sun but 75% the minirals in the dead sea that get into your bloodstream and triggers the repigmentation in combination with the sun.
      Read this: http://fightingvitiligo.com/The%20Cream

      • Reply Flavio July 17, 2014 at 3:37 am

        As a “coincidence”, Dead Sea water has the following composition:

        35% – Magnesium Chloride
        25% – Potassium Chloride
        5% – Sodium Chloride
        0.3% – Calcium Chloride
        + others.

  • Reply Flavio July 18, 2014 at 3:56 am

    Larel (Bamse…), I know you. Right?

  • Reply Pedro Gonzalez July 24, 2014 at 1:04 am

    Yes, Any new progress…..Please

    • Reply Simon July 24, 2014 at 10:05 am

      It’s unlikely I’ll post for a while as I’m very busy at work and currently moving house. I’ll update when I can.

      Simon.

  • Reply MS October 7, 2014 at 6:57 pm

    you are a prick pedro!

    thanks simon for going with this blog. you are a good bloke.

  • Reply alan October 8, 2014 at 9:24 am

    i think this blog is great, however after all that money spent by Simon and the interest that this blog has got, has the PC-Kus actually worked for Simon or not.

    • Reply Simon October 9, 2014 at 2:55 pm

      Hi Alan,

      Thank you for the kind words.

      It depends how you measure that success, my eyes 95% repigmented now but I used the PC-KUS cream only for around 2 months. I’ve been taking Ginkgo Biloba to keep the oxidisation down in the skin.

      The speed of re-pigmentation was definitely increased by going to Jordan, it’s very hard to measure how much impact came from using the PC-KUS cream. There was those in Jordan that specifically stated that PC-KUS had a major impact their repigmentation progress.

      Simon.

      • Reply Flavio October 10, 2014 at 3:12 am

        The cream works better in hairy areas, since it neutralizes hydrogen peroxide accumulated in the follicles. For non-hairy spots, it’s more efficient to use Polypodium Leucotomos cream.

  • Reply alan October 10, 2014 at 3:54 pm

    Ok , thanks for the Information, i have had Vitiligo for 12 years but its hardly noticeable, hardly any on my face but i have some on my ankles, and hands though only i notice it, i think the PC-Kus is worth a try, i to have been taking Ginko Biloba also, strange that 6 months ago i started itching on my ankles badly for no reason, then recently some white patches appeared there, thanks for the Blog and thanks for the response.

    • Reply Flavio October 11, 2014 at 4:22 am

      Alan,

      Vitiligo sufferers are highly sensitive to physical traumas (friction, injuries, itches, scratches, allergies, sun burns, impacts, violent moves, etc.) and 2) oxidative stress (excess of free radicals).
      Please see http://www.vitiligomap.com.

  • Reply Peter Jefferies December 12, 2014 at 9:52 pm

    Hi,
    Do you know if this treatment may be suitable for hypopigmentation caused by different means, that is by a laser?
    I have tried contacting the Dr at her email however have not heard back.
    Any information or contacts would be greatly appreciated.
    Thanks

  • Reply Anthony March 11, 2015 at 3:36 pm

    Why Lee Thomas not blogging anymore? I see last update on his blog is 2013? Is he totally repigmented?

  • Reply Hemant March 18, 2015 at 2:34 am

    Hi Simon,

    I have got final confirmation to join the trip to Dead Sea-2015 this year after initial consultation from Prof. Schallreuter in February-2015. Would you please guide me on following,

    1. I am travelling from Canada and pick WITH-OUT flight option. At what time Hotel will allow you to check in ? My flight arrival time at Amman airport is early morning / late night (after 2.30 am in the morning).

    2. Is their any specific visa requirement / document ? How much visa fee ?

    3. For normal expense how much Jordan Dinar require during 21 day of trip ?

    4. How much it cost me from airport to hotel car expense ?

    5. Do you have any list of items that must require / benefit during trip ?

    Your quick response will appreciated.

    Thanks,
    Hemant

    • Reply Flavio March 27, 2015 at 2:23 am

      1-All day long
      2-Yes. You pay at the airport. Check if there is special agreement with Canada.
      Around $50.
      3-Apart from hotel cost, $100 a day is more than enough.
      4-Taxi=$100, rental car ($80 per day depending on the model).
      5- Outlet adapter (they use European standard), 220v->110v converter, computer, soccer ball, sun screen.

      Good luck!

    • Reply Reena March 28, 2015 at 11:42 pm

      Hi Hemant

      I am also travelling from Canada and got our visa from the consulate of Jordan @$90 per person . Very quick and easy process.

  • Reply Bobby Lyngdoh April 15, 2015 at 10:58 am

    Hi
    Do you think whole body therapy Narrow band UVB alone can treat vitiligo safely?

    • Reply Simon April 18, 2015 at 10:10 am

      In my experience, yes it can, but without bringing down the oxidisation it can take much longer and have a higher chance or relapse.

      Simon.

      • Reply Flavio April 21, 2015 at 2:00 pm

        Agree about taking anti-oxidants (ALA and NAC). Besides, avoid physical traumas /friction and stress hormones.

        • Reply Flavio April 23, 2015 at 9:35 pm

          There are very few cases that a cream by itself re-pigments vitiligo patches. These are exceptions.

          It’s hard to believe that someone might achieve cure or even stability without a Functional Treatment support.

          When isolated corrective actions are taken, pigmentation might appear, but followed by later de-pigmentation.

          I’m convinced that the only way to counter attack vitiligo is following a Functional Treatment (FT).

          I haven’t seen a case yet that a FT didn’t improve vitiligo. Stop spreading is the main goal. Re-pigmentation comes later.

          FT takes in consideration 3 approaches, as follows:

          1- Basic Preemptive Actions

          Diet (gluten-free), vitamins, minerals, trace nutrients, anti-fungals, probiotics and Omega 3.

          2-Basic Corrective Actions

          UVB-NB, pseudocatalase, protopic (face), and/or Elidel.

          3-Generic Actions

          Life style change (get rid of people that make you feel bad; try to be part of a group, i.e. someone important and relevant. Find another group if necessary)

          Stop physical traumas: friction, hits, sun burns, scratches etc.

          *It’s a pity, but martial art is not a good option because of the constant traumas it causes.

          *Yoga is great (thanks to Mark’s suggestion)

          Conclusion (same as introduction):

          There are very few cases that a cream by itself re-pigmented vitiligo patches. These were exceptions.

          It’s hard to believe that someone might achieve cure or even stability without a FT support.

          When isolated corrective actions are taken, pigmentation might appear, but followed by later de-pigmentation.

          I’m sure that the main rule, that works to most people, with rare exceptions, is following a Functional Treatment. More detais at: http://www.vitiligomap.com/protocol.html

      • Reply tony April 26, 2015 at 10:01 am

        Hey Simon, I’ve been keeping abreast with your blog for a while and recently visited prof. Karin Schallreuter at the clinic for treatment. Repigmentation of my face is going well with the combined treatment of pckus and the hand held lamp which you use. I too have hyper pigmentation on the repigmented areas. How long does it take to level out to the normal skin colour.

        • Reply Flavio June 8, 2015 at 6:57 pm

          Takes a while. But don’t worry about it.

  • Reply Kally Sitaras May 12, 2015 at 10:14 am

    Which hotel does Dr. Schallreuter conduct her therapy from?

  • Reply javier moreno June 15, 2015 at 7:07 pm

    Hi Simon! Thanks for your blog!
    I would like to know what kind of uvb lamp are you using. Where did you buy it?

  • Reply Eka September 8, 2015 at 8:08 am

    Hello Simon,

    I have just read everything and I have some questions,can I go alone on dead sea and do all these treatments alone? I read a lot about dead sea treatment and that’s why i think so.

  • Reply Marisela Perez February 17, 2016 at 9:30 pm

    Hello my name is Marisela … I have vitiligo on my face … On the tip of my toes … My fingers … And genital areas . I wanted to know the Information for this treatment facility in Jordan . Address and contact information (telephone number ) and a name of someone I can speak with directly . Also one more question ..how many days would someone have to stay there for the one and first treatment ? Thank you can’t wait to hear back . Desperately waiting

  • Reply Marisela February 20, 2016 at 2:03 am

    Can’t read your comment … Don’t know why… Don’t know if I’m doing this right. 🤔🤔😞😞

  • Reply Lullit March 26, 2017 at 10:49 am

    Hi Simon. Thanks fpr this blog. I realize this was written a while ago, i was wondering of you do have any updates re: your quest for a solution that will solve the internal issue also I wonder if you have heard about the treatment in Cuba, with placenta extact, i came back from
    cuba witha year’s worth of supply but am extremely disheartened, especially now that a spot is appearing on my face!!! Oh someone help!!!

    • Reply Simon April 7, 2017 at 7:04 pm

      Hi Lullit,

      My Vitiligo is stable at the moment, and have some improvements from my latest trip to the Dead Sea. I’m still working on some of the internal issues to try and identify if I have any food interolances. I also wonder if my Vitiligo is psychosomatic in this instance so I’m exploring other possibilities of the trigger.

      I have heard of the Cuba treatment with placenta extract, I’ve never heard first hand experience of it though. I’d be really keen to see how you get on with it, I’ve heard positive things previously online.

      Keep going with the treatment. Vitiligo can be fickle sometimes but there are many options for treating the condition.

      Regards

      Simon.

  • Reply Olle April 12, 2017 at 2:04 pm

    Hi Simon, how can I get in touch with Dr. Schallreuter?

  • Reply Safa Muhi September 13, 2017 at 11:46 am

    Hi Simon,
    i currently live in Jordan ,and i also have vitiligo ,tried different treatments ,but i never heard of the place in the dead sea, can you please give me more details about the place you stayed in and where to get the PC-KUS from.
    were you staying in a treatment spa or it was just a hotel ?
    and does Dr. Schallreuter live in Jordan ?
    Regards
    Safa.

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