I recently reached out to a UK Charity called the Vitiligo Society to inform them I was working to create a meetup in London. Yesterday, I met with two of the Trustees for an initial conversation on how we could potentially partner to increase Vitiligo awareness and support in the UK. There could be some exciting things coming up, so watch this space!
Coincidentally, as I was discussing the idea of a group meetup in London, they informed me of a Vitiligo Open Day they are hosting on the 31st of October.
This isn’t a replacement for the informal group get-together that I’m planning as I’ve had about 30 people register interest so far. When I’ve got the details sorted out (such as venue, date, etc), I’ll reach out to those who registered interest as well as posting the information on the blog.
Regardless, I’m going to be attending the open day on the 31st so it would be great to see you there too!
I’ve included details and agenda below, Polly Gotschi will be speaking who recently featured on “Dragons Den” and won funding for her Vitiligo Camouflage product. Registration is £5 for Members and £10 non-members. Click here to register.
Vitiligo Open Day 2015
The 2015 Vitiligo Open Day entitled “Vitiligo – Living with it, Managing it, Beating it”
will take place on Saturday 31st October 2015 From 9:30 am to 4:00 pm
VITILIGO SOCIETY OPEN DAY : SATURDAY 31 OCTOBER 2015
LOCATION : 24 Greencoat Place, London SW1P 1RD
Start Time : 10.00 (registration from 9.30)
Finish Time: 16.00
Programme
| There will be six camouflage appointments available with Changing Faces camouflage consultants during the afternoon. These will be available on a “First come, First Served” basis on the day. | ||
| Vitiligo Today – Current Treatments and the future
|
Dr Anjali Mahto | 10.00 to 10.30 |
| Update on the Hi-Lite trial | Dr Jonathan Batchelor | 10.30 – 11.00 |
|
Coffee 11.00 to 11.15 |
||
| Psychological Interventions: Report and Focus Group | Dr Alia Ahmed | 11.15 – 11.45
|
| Changing Faces | Henrietta Spalding | 11.45 – 12.15 |
| An update on skin bleaching: St Thomas’ Hospital | Sophie Momen | 12.15 – 12.45 |
| Vitiligo Society AGM | Chair | 12.45 – 13.00 |
|
LUNCH 13.00 – 14.00 |
||
|
Camouflage appointments available |
||
| Nutrition | Ann Souter & Ceri Morgan | 14.00 – 15.00 |
| Vitiliglow™and Dragons’ Den | Polly Gotschi, Founder of Vitiliglow™ | 15.00 – 15.30 |
| Closing Session – Question and Answer | All Presenters |
15.30 – 15.45 |
11 Comments
Hi Simon
Thanks for sharing this. Hope to see you there.
Regards
Imran
Hi Imran,
Great to hear, please come and make yourself known to me at some point during the day!
Look forward to seeing you there.
Simon.
Will do! Thanks.
Hi Simon
It was great to finally meet you in person at the Vitiligo Society last year. I’m off to see Prof. Schallreuter’s in Germany this Sunday. Please let me know if there are any questions that you like me to ask.
Kind Regards
Imran
Hey Simon,
Do you know if there Is another upcoming open day?
Hi Kav,
I’m arranging a Vitiligo meet-up next year in conjunction with the UK Vitiligo Society Charity, but I believe there are plans to hold another official open day at some point next year.
Regards
Simon.
Hi all,
Don’t forget to sign up at http://www.vitiligomap.com and get a free Paleo Diet ebook.
VitiligoMap is now a network platform (forum, blogs, articles, etc.) that is complementary to Simon’s Blog, focusing on treatments and researches only.
Regards,
Flavio
Simon,
Please post the meet-up at Vitiligomap.com, if they are related to treatment and research sharing.
Regards,
Flavio
Hey Simon,
Gutted I missed the October 31st open day?
Any plans for another one?
Hi Philip,
I’m arranging a Vitiligo meet-up next in Q1 in conjunction with the UK Vitiligo Society, but I believe there are plans to hold another official open day at some point later in the year.
Regards
Simon.
Hiii sr i am a paisent of a vitligo sr please help me
Thank you