Just a quick update to say I’ve just arrived back home to the UK from an amazing 21 days in Jordan!
I couldn’t find the time to blog at all whilst out there but I’ll have something up with in the next few days with details about the treatment and how it’s worked for me so far.
It’s good news though 🙂
24 Comments
Hi Simon! So happy to see that u r back! I am so excited to hear what u have to tell us! I have been following your blog. My 5 almost 6 yr old ( her birthday is tomorrow) has vitiligo and it is slowly spreading. It breaks my heart. I spend hours searching for “cures” on the internet. I took her to a dermatologist and a naturopathic doctor 2 months ago. She is using cutivate and protopic and is on a gluten and dairy free diet. 2 little spots on her forehead have disappeared but the other spots r still the same. Day before yesterday i saw that she has it on her nose. It just breaks my heart. She also started taking Chakra Pigmento 3 days ago which the naturapathic doctor prescribed. I hope it works. But i am curious to know more about dr Karin Schullreuters treatment. I saw Lee Thomas’s video after the treatment and it seemed to work with him. Please inform us more about this. Did you see children there? Good luck and all the best for you and everyone that has vitiligo. I pray that there will be a cure very soon!
Hi Delly,
Happy Birthday to your Daughter! 🙂
Thanks for the comment, it keeps me motivated to continue blogging.
I would say continue with what you are currently doing, it’s not uncommon to repigment and depigment simultaneously whilst the Vitiligo is stabilising.
Lee Thomas was actually at the Dead Sea whilst I was there. Seeing as he had fully depigmented, he’s now at about 80% repgimented which is incredible and a good advert for Schallreuter’s treatment.
Yes there were quite a few children there and Schallreuter really focuses and takes care of them. It’s really nice to see.
The Dead Sea post will be up soon.
Simon.
Thanks Simon! I am starting to feel more positive!
Dear Delly,
Since three weeks I am back with my 10 year old daughter from the same trip Simon did (probably he doesn’t recall because we arrived with the fifth group).
My daughter was 6 when vitiligo appeared. I knew from the first tiny spot what it was because as a child I had a few spots which disappeared in my puberty. We tried a few things to improve it and very early I got in contact with the Schallreuter team (you can’t miss her if you search for treatment and expertise in vitiligo). Fortunately we live in Germany and after starting the PC KUS treatment we saw minor success in my daughters repigmentation process. This encouraged us to go to Jordan last year: it was a group of 12 children and the atmosphere for the kids has been great even though the climatherapy was hard for them: 15 min. each side (3 turns) in the direct sun, 35 degrees in the shade, twice a day. 2-3 weeks after our return Wiebke started to get pigments in her face and her back. Some months later a huge spot on her forehead had vanished. It was a matter of fact that we had to go a second time because we had some setbacks (Wiebke’s starting puberty and the hormonal rearrangement triggers H2O2 activity). This time we spend only two weeks but the success is stunning: every morning when I put on the lotion on her skin I can see new pigments. It’s like getting massive freckles in the early summer which grow and spread. We are really happy & thankful about this progress and I am certain to be on the right path with this therapy.
I just can encourage you to seek help from Professor Schallreuter.
Dear Delly, if you need more information or some pictures please contact me.
All best wishes for you & your daughter,
Uli
Hi Uli
We are going to Jordan with my 10 year old . Very encouraged to see your letter .can you give me more information on your trip ?
You can email me.
Reena
Hello, Ulrike Pomiluck
My nam is Dmetricus and I’ve had Vitiligo for 20yrs. I live in the USA. I have had a difficult time reaches Dr. Schallreuter. Would you please email their contact information……thanks
Hi Simon,
I have vitiligo too and had been planning to go for a trip to the dead sea sometime this year. I need to plan and I would like to know how many days you have to spend there to actually see results – when is the best time to go – so basically what’s the process, time scale, cost.. etc.
I would be grateful if you could advise on this 🙂
Thanks,
Sweta
Hi Sweta,
I believe the Dead Sea is key to kickstarting repgimentation but it must be continued at home with UVB lamp or bed, depending on how much of the body is affected with Vitiligo. From just my experience, April/May time is good time but some do go later in the year. I’ve got older posts covering what I’ve spent on it. I’ll give the process and times in the next post, I’ll get round to it soon, it’s been delayed as I’ve been very busy at the moment.
Thanks for taking the time to comment.
Regards
Simon.
Hi Simon,
Questions:
1. Do you have to go to Jordan or can you go to Israel
2. What period of the year is best to go
3. The cream where can you get it. How many tubes of cream. Do you need a doctor’s prescription.
4. Is this a hotel that you go or a clinic.
5. Is there a package for the type of healthy meal (breakfast, lunch and dinner).
6. If so how much for the meal.
7. If is a hotel how much per day, per week, per month.
8. How many days you need to be there. Minimum days and Maximum days.
9. Do they have a gym.
10. If you have to go to Jordan can you visit Israel.
11. Show pictures, pictures, pictures!!!!!!
12. If the treatment is working, re-pigmentation is occurring, is the same color the same as the normal pigmented skin. Or is darker or lighter.
13. Do you lay out on the sea naked or you have to where bathing suit.
14. Are you taking daily pictures.
15. How many tubes you used through out the days staying there.
16. Do they have the cream at Jordan.
17. The taxi cost from and to the airport.
18. Remember pictures!!!!
19. Do they have internet access.
20. Do they speak english.
21. How many times has Lee Thomas been in Jordan.
22. How is Lee Thomas’s hands and feet have they gotten better.
23. How is the water can you drink it or do they have bottle water.
24. Do they have vegetables and healthy food.
25. Are there other people do the same treatment with Vitiligo.
26. Pictures!!!!
27. Pictures!!!!
28. Pictures!!!!
29. Pictures!!!!
30. Pictures!!!!
Thank you
1. Some do go to Israel but this isn’t with Professor Schallreuter
2. Prof. Schallreuter goes April/May
3. Get the cream from Prof. Schallreuter, 95 euro per bottle. No official perscription needed
4. A hotel with a clinic on site.
5. Buffet breakfast and dinner included with the Schallreuter’s trip, healthy options available.
6. As above.
7. Hotel rates varies depending on room type
8. 21 Days
9. Yes
10. Yes
11. Pictures coming
12. Different for everyone, in my case, darker initially – Hyper pigmentation.
13. Naked in a private solarium, Men and Women separated.
14. Of what? Skin or location?
15. I only used one bottle, some used more
16. No, you must buy before hand
17. 25 JD each way
18. Pictures coming
19. Yes, but patchy and not reliable in my case
20. Most do
21. Twice including this time
22. From memory, I don’t think he’s seen much improvement on those parts
23. Bottled Water
24. Yes
25. Other people that have Vitiligo that aren’t there with Schallreuter? If so, yes.
I have Vitiligo and live outside of Charlotte, NC in beautiful Lake Norman. LOVE, LOVE, LOVE your blogs. Cannot wait to hear about your trip to the Dead Sea. Not sure if there is a way to get notifications of your new blogs, but if so…sign me up!
Hi Angela,
Thanks for your kind comments. I’ll add a subscription button soon 🙂
Stay tuned.
Regards
Simon
Hi Simon,
I left you a comment earlier – but my question now is – is it necessary to go to the dead sea if you have the pseudocatalase cream and on UVB treatment? Also where do you buy the cream? Can you trust this site: http://www.pseudocatalase.com/index.html ?
Thanks for getting back to me!
Cheers,
Sweta
Hi Sweta,
I found just the PC-KUS & UVB very slow. PC-KUS & Climatherapy at the Dead Sea definitely has increased my rate of repigmentation combined with the UVB so I feel it’s definitely an important part of the process if you’d like the best chance of repigmentation.
I haven’t used that site, but I know some that have. As I understood it they had reverse engineered Dr Schallreuters cream to sell it. It may be the same, but I only buy from her as I can guarantee it’s the patented formula and if I have any issues I can contact her.
Simon
Glad all went well in Jordan looking forward to reading about it.
Thanks Pierre, I’ll post soon explaining all that happened in Jordan.
Simon
I am sorry to be forward, but by now Simon had enough time to settle back from his long journey and had time to written something. The suspend is killing me. Simon just write two paragraphs of how things turned out, please.
Pedro,
Please be patient.
As I said in previous posts, I’ve started a new job and moved to London. I’ve had little time at the moment. I’ll get a post up soon answering your questions.
Simon.
My daughter has vitiligo and and haven’t gone into treatments because it doesn’t bother her yet. We tried steroid cream where her skin does re-pigment but only short-term – which I guess would mean she would respond to UVA treatments. Would you recommend UVA treatments?
Hi Ashley,
I wouldn’t really recommend PUVA now a days, I feel that narrowband UVB treatments are a lot safer and seem more affective than PUVA.
Regards
Simon.
Simon,
love the blog. I have been looking for a reliable place to find relevant information, and so far, this is the only place that has given me hope. I can’t go to the Dead Sea until 2016 (getting married next year, and need to save the vacation). Until then, is it possible to order the cream from Dr. Schallreuter, and if it is, how do I do that? What is a good place online to buy the UVB lamps needed to use with the cream?
Nazif,
Thanks for the kind comments!
I’m unsure if you can buy the cream from Prof. Schallreuter without seeing her in Germany first. She tests for reactions and also can prescribe different creams depending on your Vitiligo(one of the creams contains protopic for example). I recommend e-mailing her and finding out.
I always buy from Amazon. I think the full UVB panel is about £2600 and the lamp about £180.
Hope this helps!
Regards
Simon.
How do I get in touch with Professor Schallreuter
I have vitiligo
http://www.vitiligo.eu.com/