On Friday 11th December 2020, The Vitiligo Society will be hosting an online virtual summit, the first of its type in the history of the charity.
On the day we will be bringing you 3 incredible speakers that will be presenting the latest developments in relation to vitiligo and they’ll be doing so in the comfort of your own home.
Joining us will be:
I received an email this morning from the Institute for Pigmentary Disorders in Greifwalds, the clinic run by Prof Karin Schallreuter to say that they are closing for good from January 1 2021:
The PC-KUS combined with Jordan climatotherapy helped me tremendously in repigmenting some of my vitiligo a few years ago. I’m sure the programme has helped countless others and so it’s sad to see it’s closing down and treatment will no longer be offered.
From the letter, it looks as if the PC-KUS cream can still be ordered from Prof. Schallreuter although it’s unclear if you need to be an existing patient in order to purchase.
The Institute for Pigmentary Disorders sent out a follow up email containing answers to some frequently asked questions, including ordering PC-KUS cream and Anti-OX capsules:
Those who are familiar with my blog will know that I’ve visited the Dead Sea for climatotherapy treatment a second time without going with the Institute for Pigmentary Disorder’s group and not using PC-KUS. And still received some success in repigmenting my skin.
The Dead Sea Spa hotel has it’s own Medical Center, and there other groups that attend for different skin treatements including vitiligo.
Freimuth Reisen GmbH is a travel agent based out of Germany that are dedicated to providing travel/accommodation for treating skin conditions. I used them for my trip back to Jordan in 2016 and had a good experience.
I enquried about returning to Jordan in 2021 and received the following repsonse:
Dear Simon,
thank you for your enquiry. Yes, we still operating as travel-agent for skin treatments in Jordan. At the moment, we don’t have any prices for 2021. We usually do the calculation for the tours at the end of the year (latest in Jan. 2021). You can look contact us after mid-Jan. regarding your booking. We shall then book for you accordingly.
Meanwhile stay healthy and all the best to you.
Best regards
Freimuth Reisen GmbH
If you are interested to know more, please contact – info@freimuth-reisen.de
Disclaimer – I have NO paid affiliation with Freimuth Reisen GmbH and just offering as a potential option for those looking to go to the Dead Sea to treat vitiligo with climatotherapy. Feel free to mention the reference ‘simonsvitiligoblog’ so they know that you came from my blog, but please do your own due diligence when working with a travel agent.
Hello everyone!
It’s been a while since I’ve done anything on the blog and I’ve had a ton of comments and messages. I’ve been trying to work my way through them and respond, so thank you for your patience and I apologise for the long delays.
It’s amazing to think that I started this blog in 2013 at the ripe old age of 24. I’m now 32 and my relationship with my vitiligo has drastically changed over the years, but my engagement with the vitiligo community, if anything, has increased.
I thought I’d give a short update in the blog and explain where I’ve been and what I’ve been doing…
Vlogs are like buses… You wait for ages and two come along at once.
This Vlog documents my repigmentation process and an example consultation with Dr Zuhair Bisharat, Dermatologist and Director at the Dead Sea Medical Centre. Note: The video is shot in the final week of the trip but the consultation is from the first week.
Apologies:
– The second half of the video will likely be dull for those that are not interested in getting treated by Dr Bisharat at the Dead Sea Medical Centre
– Audio quality is pretty poor in the second half because of the distance from the camera mic
Simon’s Vitiligo Vlog 05: Dead Sea Dermatologist
Disclaimer: I am not a medical professional. I am purely a patient that suffers from Vitiligo giving my story and sharing treatments that have worked for me. Everybody should do their own due diligence in treating Vitiligo and speak to qualified professionals. I am not responsible for anyone that chooses to undertake the Dead Sea treatment and its results.